Hemophilia Society (Mumbai) Chapter was founded in 1991 with Dr. Deepika Mohanty as the president and a small office with a very low membership.

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Advocacy Action Plan Meeting Summary

Advocacy Action Plan Meeting Summary

Date: September 20, 2024
Location: Society Office & DHS Mumbai

The Women’s and Youth Groups of the Hemophilia Society Mumbai Chapter, led by Secretary Mr. Jigar Kotecha, convened on September 20 to strategize advocacy efforts for the year.

Advocacy Highlights

Members visited the Directorate of Health Services (DHS) to address key issues related to hemophilia treatment accessibility. Advocacy banners spotlighted critical concerns:

  • Insufficient availability and unequal distribution of factors
  • Lack of awareness initiatives (CD/PND programs)
  • Limited supply of essential medicines

After waiting until 5:45 PM, a meeting with Dr. Kendre yielded promising discussions. He suggested approaching higher authorities to increase treatment budgets and collaborating with pharmaceutical companies for timely factor distribution.

Key Contributors

  • Mrs. Veronica Correia: Western Region Women’s Coordinator who spearheaded the action plan.
  • Indira Nair Ji and Veronica Correia Ji: Guided volunteers in effective advocacy.
  • Sheetal Ghorpade, Ravindra More, Jaynit Jogi (Youth President): Delivered an impactful presentation at DHS.

This meeting marks a hopeful step toward improved hemophilia care in Mumbai. Stay tuned for updates!

HemophMumbaiAdm
ishatva@gmail.com
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