The Hemophilia Society Mumbai (Chapter), established in 1993, is a self-help nonprofit organization run by Persons with Hemophilia (PWH), for Persons with Hemophilia.
Our mission is to empower individuals with hemophilia by providing access to better treatment facilities and equipping them to manage the disorder effectively. With a registered community of approximately 1,000 patients, we are dedicated to creating a supportive network that addresses both medical and social challenges.
What We Do
We work across multiple areas to improve the lives of PWH, including:
Spreading Awareness: Educating the public and stakeholders about hemophilia through various media platforms.
Organizing Medical Camps: Facilitating access to quality care and expert consultations.
Counseling and Empowerment: Supporting youth and women in the community to become self-reliant in managing their lives and the disorder.
Advocacy: Lobbying with government and private organizations to improve treatment facilities and policies for hemophilia care.
Capacity Building: Conducting programs to empower PWH with knowledge, resources, and life skills.
At the Hemophilia Society Mumbai (Chapter), we are committed to building a future where every person with hemophilia has the opportunity to live a healthier, more independent, and fulfilling life.
Vision
Hemophilia without disability, childern free of pain